“ROBERTA, GET YOUR SISTER OUT OF THAT TREE!”

Eight words that I bet my mom never thought she’d say when she and my dad received my diagnosis of CP, but always expect the unexpected when you have two adventurous daughters.

I grew up in a residential neighborhood in the Midwest, where many families had children around my age. During summer vacation, all of the neighborhood kids, myself included, would gather outside and play from sun up ‘til sundown, taking breaks only for lunch and dinner. Even then, we would eat as quickly as possible so as not to miss out on the latest game or a trip to the candy store. One of the favorite past times of the group was climbing the tree in my family’s backyard. Ordinarily, we would ride our bikes and big wheel(I was rocking a lovely pink big wheel- sadly, the store didn’t have a purple one), to the base of the tree where everyone would climb the tree and I would stay on the ground to be the lookout. Technically, we weren’t quite allowed to climb that tree but hey, what is childhood without bending – ok, breaking- a few rules.

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Allison, when are you going to post again?

Hello Everyone!

I hope you are having a great day! This morning, I have received a few messages asking when I will post my next entry, so I thought I’d share my schedule for blog posting. While I love to write, because of my CP, typing takes a long time and requires me to expend a great deal of energy and concentration. To be careful with my muscles, I will post new entries on the second and fourth Thursday of each month. Please feel free to subscribe to my blog to receive notifications of new posts.

I would also like to thank everyone for your excitement and support of this new adventure! Your messages of love have made my week and have given me inspiration to continue sharing my journey! I have been, and continue to be, awed by everyone’s response. Thank you, thank you, thank you!

Until next week, may you all be surrounded by purple! 🙂

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You know it’s time for a change when…

You have 8 near death experiences in 3 days. Yes, you read that correctly. Hi, let me introduce myself. My name is Allison. I was born with athetoid cerebral palsy(CP) and have been a disability advocate from day 1. My faith and the color purple(the actual color purple that is, although the movie is  good as well-just ask my sister who can recite the entire movie by heart) are two pillars in my life. In December 2014, I had an experience, 8 to be exact, that propelled me to change my life dramatically.

In 2011, I graduated from MIT with a PhD in economics. I landed my dream job, was living independently in a beautiful, accessible apartment and had a wonderful support system. Then slowly, ever so slowly, my health began  to change. This culminated in a serious illness in December 2014 that resulted in 8 near death experiences in less than 1 week. I don’t know about you but, “near death” is about as near to death as I want to get for several decades!

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